This news fully reflects the difficulties faced by China in the field of rare disease medication. Due to the limited number of drug users for rare diseases and the huge research and development cost, the original research enterprise needs to recover the cost within the patent period, and the drug price is bound to be expensive in the short term. It is unbearable for ordinary families.
As the leading Internet service platform for personal serious illness in China, Anxin Chip has been actively participating in the rescue of rare diseases, taking advantage of its unique advantages as a network rescue platform, uniting all walks of life to participate in exploring and building a rescue model, and mobilizing caring people to expand the rescue fund pool in the future.
The rare diseases that seek help most through peace of mind are myasthenia gravis, gradual freezing, hemophilia, Wilson and immune encephalitis. The top five rare diseases with the highest fund-raising amount are immune encephalitis, myasthenia gravis, frozen human, retinoblastoma and leishmaniasis.
The number of patients with rare diseases in China is estimated to exceed 20 million, and among them, not every patient is lucky enough to receive treatment. To achieve national health, patients with rare diseases cannot be ignored. With the help of public welfare, let love expand its voice. In order to let more people know more about rare diseases, Anxin has been working hard to help patients with rare diseases. As a health protection platform, Anxin has been exploring on the road of public welfare. In caring for rare diseases, Anxin has always adhered to the classic model of public welfare.
As a social force involved in the rescue of serious illness, "Anxin" will uphold the concept of "everyone for me and I for everyone" and strive to help more seriously ill patients who need help. With the development of the times, the Internet has broadened the new thinking of serious illness relief. "Anxin" will use online channels to provide fast, effective and professional fundraising services for vulnerable groups. By paying attention to the "Peace of Mind and Mutual Assistance Program"
On the official WeChat account, seriously ill patients can initiate fundraising, and the fundraising page can be spread among acquaintances of WeChat, thus helping users to raise medical expenses quickly and timely.
Anxin plans to move the offline behavior of "mutual assistance" to social networks through mobile internet technology, enriching the channels for patients to seek help from the public. Any family or patient suffering from serious illness or sudden accident can apply for launching a rescue project in Anxin. In addition to donating money for patients themselves, the public can also help seriously ill patients and their families in trouble to publish and disseminate help information more conveniently by sharing with relatives and friends and mobile payment, so that donors can lend a helping hand more conveniently.
The charity activity of "keeping peace of mind and making love not rare" sends a love support to families with rare diseases and makes love not rare!