One injection of medicine for the rare disease spinal muscular atrophy costs 700,000 yuan. Faced with this sky-high price of medicine, many parents of children not only sacrifice their youth, but also suffer great mental pressure. .
Previously, one injection of Biogen's Nosinaxin Sodium Injection cost 700,000 yuan, which is the price of treating spinal muscular atrophy. This is something that many families cannot afford, and even many current families will struggle with this huge expense, not to mention more ordinary families! After negotiations with the State Administration of Pharmacy, pharmaceutical companies have actually lowered their prices a lot, but they are indeed not up to the floor prices claimed in the news. After all, the annual cost of treatment with these drugs is still as high as about 300,000 yuan. According to the earning power of many families, Which family can guarantee that they can earn so much money in a year?
Facing this kind of sky-high price of medicine, parents not only devote all their time, but also inevitably suffer some energy loss. In order to raise money to buy these medicines, in fact, in addition to spending their own time to make money, many parents ask their relatives and friends to borrow money to treat a rare disease, which puts a huge burden on a family. It is heartbreaking to think about it. , this is also what many parents who have children with rare diseases have to bear, which can be considered physically and mentally tiring.
In fact, it is distressing for parents to pay a lot for their children. In fact, after many pharmaceutical companies design a new drug, it often sells it more expensively due to patent monopoly. The State Pharmacy Administration has actually negotiated with these pharmaceutical companies. The price of rare drugs has been significantly reduced, but the prices of these drugs are still very expensive for ordinary families. Sometimes a rare disease appears in a family, and the patient makes the whole family bankrupt. This is a tragedy for society, so this is also the significance of state regulation in society.
To sum up all the above, many parents face both material and mental pressure when faced with sky-high prices for drugs, which is something that those who have not experienced it cannot understand.