The medicine for this disease is very special. It is a specific drug for treating SMA (spinal muscular atrophy). What's its name? Noxinasen sodium injection? . This disease belongs to a very small number. There are 65.438+0.4 billion people in China, and it seems that there are only 20,000 registered cases. Because it belongs to the field of rare diseases, expensive medicine is also an unsolved problem. In the whole process of new drugs from research and development to market, investment is a bottomless pit. In the end, these costs will be shared equally with these rare patients, and the drug price will be extremely expensive. But there is no way, drug research and development companies are not profitable, and investors have not made any money. Next, there may be no company to develop specific drugs for this rare disease. At this time, once diagnosed, it means the end of life.
In order to treat his son, Mr. and Mrs. Du sent his son to Shenzhen Children's Hospital. Two people took all their savings and loans, as well as their parents' pension, provident fund and money borrowed by friends, and swiped their cards at the hospital pharmacy to buy medicine. The last two swiped nearly 700,000 cards.
Not to mention the treatment cost of Mr. Du's children in the later period, the injection alone will cost 700,000 yuan, which has brought great pressure to Mr. Du's family. Mr. and Mrs. Du said that as long as the child is alive, there is hope. Even if the body is under great pressure now, my wife and I will do our best as long as the child has the possibility of recovery. In any case, there is still hope for the child to live. For this couple, they are under great pressure for their children, and whether the child's illness can gradually recover will also become the key factor for the couple's future life destiny changes.